Knowledge of the diagnosis is extremely important, if not essential, for numerous decisions which must be taken in the three areas covered by these recommendations. A key element in respecting the human rights of adults with incapacity due to dementia is the importance of an early diagnosis. This represents a break from much of the existing legislation in Europe, which apart from a few exceptions, is based on the protection of the person and/or his/her property. The underlying philosophy of the recommendations is the respect for human rights. In addition, the views of other associations and individuals with common interests were taken into account. This was made possible through the financial support of the European Commission (under the programme "Support for transnational actions aimed at combating discrimination against elderly and/or disabled people", VS/1999/0226).īuilding on the results of a previous EC funded project (the Alzheimer programme, SOC97 201298 05F03), which involved collecting, translating and comparing legislation relating to the rights of people with dementia from all member states of the European Union, Alzheimer Europe received additional funding to write recommendations on:Įxpert meetings were held and all member associations of Alzheimer Europe were given the opportunity to comment on the various drafts. The following recommendations are the end result of one year’s work carried out by Alzheimer Europe, in collaboration with its member associations, legal experts and other concerned individuals. The full paper can be downloaded as a PDF, and contains a glossary of key terms, as well as appendices containing additional information and templates. This page contains an abridged version of the position paper on how to improve legal rights and protection of people with incapacity. European Working Group of People with Dementia.
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